Do You Hear What I Hear? How MS Affects Your Hearing

Multiple Sclerosis and Hearing

What?  I’m sorry?  Would you mind saying that again?  My family’s getting used to me saying this.  I have what I call MS Ear:  a heaviness or “thickness” felt in ones ear often accompanied by the sounds of a helicopter in the distance or of a microphone left “open” in the wind.  I HATE IT.  And I’ve had, this time, for a few weeks.  It’s certainly not the worst symptom I’ve had, but it’s one of the most annoying.

Shortly after I was diagnosed I had a bout with it.  I didn’t think it could be MS – neither did my original neurologist.  So – I started on an odyssey of different specialty doctors to try to find out what was wrong with my ear.  There were a TON of tests – all without conclusion.  There was nothing measurably wrong.  The docs started looking at me like it was “all in my head”!  Well – it is!!  And it’s loud and it’s annoying.  And I’d like, very much, to find a remedy for it.  So – I knew just where to turn.  The FUMS community!  I’ve seen people from one end of this earth help people on the other end of this earth with something like a suggestion of an herb that might help for a certain weird symptom.

So – what say you?  Do you have any suggestions for me?  Has this ever happened to you?  If so, has your doctor recognized it or are you out here on this ledge with me?

I so appreciate all of the love and support I get from this community.  And I love watching you all help each other.  I’ll look forward to any and all suggestions.  Thanks in advance.  FUMS!!

 

 

Special thanks to www.FreeDigitalPhotos.net for the use of the picture of the chick trying to hear something!!

 

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3 Responses to “Do You Hear What I Hear? How MS Affects Your Hearing”

  1. Peter Dahlgren Says:

    Hi, I had a hearing problem around the time I was diagnosed [6 years ago]. First I lost hearing in one ear which came back in a few weeks. The same then happened to my other ear. Overall it didn’t come back completely but I haven’t had and problems since.
    Pete

    Reply

  2. Geoff Hone Says:

    I started to get hearing loss before the onset of MS. The cause was quite east to pin down – too much rifle shooting when in the army back in the early 1960s. This was only in my left ear. Around the onset of MS, my hearing got a lot worse – I was doing some lecturing, and talking at conferences, and the only way I could handle questions was by moving down into the middle of the room. This worked for the two years before I finally retired – but as the MS got worse, so did the hearing. I needed the TV turned right up. Even worse, I am in the UK and the steering wheel is on the right-hand side, and my wife sits on the left, and she has to shout.
    So I had a hearing test – thinking that an aid in my left ear would fix things. Then I found out that the right ear was not good either. This could be age related, or MS related, but I have two aids – one in each ear.
    Hope this helps.
    Geoff

    Reply

  3. Vicki Goranson Says:

    Buzzing, high pitched ringing, roaring, so loud at times I cannot here normal conversation. Have been to two specialists, tests, looking at me like I needed heavy medications. I have not found anything to help, so I am very interested in these findings. Please believe me these sounds lesson the quality of my everyday life. Now throw about a dozen crappy symptoms from MS.

    Reply

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