Tag Archives: FUMS

Disabled Parking Placards and Other Indignities

parking-placard

Today my updated “Virginia Permanent Disabled Parking Placard” arrived in the mail.  This is the update from the original that I begrudgingly ordered 5 years ago.  I remember being so mad that I “had” to get this very visible sign of my invisible disease.  It just seemed like both a personal affront and an admission […]

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Live – From The Orange Carpet . . .

Sharon Osbourne, Kathy Reagan Young, Nancy Davis and Jack Osbourne

  Did you know that medical funding is extremely competitive – for grant money and straight donation?  That means that a scientist in Budapest might have a piece of the puzzle that would fit perfectly with a scientist’s piece of puzzle in Switzerland, but they’re guarding their pieces instead of sharing for fear of losing […]

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What a Long, Strange Trip It’s Been . . .

Happy Anniversary

  Tomorrow is my anniversary.  Not my wedding anniversary.  It’s the 5th anniversary of the day I woke up and realized something was very wrong.  I had a good, solid 8 hours of sleep the night before, but I was unbelievably tired.  I couldn’t really explain what was wrong with my eye, but something was […]

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MS – Choosing Your Poison

Medicine - Pick Your Poison

  When I was diagnosed, the neurologist pushed several large binders across his desk at me and told me to review them and decide which injectable I’d like to start on immediately.  WOW!  That was a shocker.  I had just been told I had this chronic disease and now I’m supposed to read and understand […]

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Do You Hear What I Hear? How MS Affects Your Hearing

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What?  I’m sorry?  Would you mind saying that again?  My family’s getting used to me saying this.  I have what I call MS Ear:  a heaviness or “thickness” felt in ones ear often accompanied by the sounds of a helicopter in the distance or of a microphone left “open” in the wind.  I HATE IT. […]

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