If you’re connected with Multiple Sclerosis in any way – whether you’re a patient, or a caregiver, family member, or loved one of somebody with the disease – it’s easy (and NATURAL) to live in the what-ifs. We can all wallow in the negatives – hey, there’s a reason why this podcast is called FUMS!
But Sue Casey, my guest today, tries to live by a different mantra – “Grab The Happy!”
Sue has been living with MS for nearly 50 years. This means that when she was first diagnosed, they didn’t have MRIs or any of the procedures that we all experience today. And Disease Modifying Therapies? Forget about it!
Even though her neurologist told her to never get married or have children, Sue has lived a full and happy life and as her MS has progressed, she has learned to appreciate the small things. And whenever I speak to her she just exudes kindness and love.
As you’ll hear, Sue has not had it easy, so her positive attitude is hard-won. And, listening to this, you might not be ready to adopt even the smallest part of this mindset. But at some point, you do have a decision to make, and I hope you’ll be inspired by Sue’s approach to life with MS.
Topics covered in this episode include:
- Sue’s life before MS, her initial symptoms, and the story of her diagnosis
- How the diagnostic procedure looked in the time before MRIs
- Sue’s limited experience of DMTs
- The progression of Sue’s MS, and how she chooses to look for the positives in her life
Resources for this episode (clickable links):
- Visit the Patients Getting Paid podcast and community
- Help keep FUMS alive at the FUMS Podcast Patreon page – or buy FUMS Merch
- If you’re getting value from FUMS, please consider leaving a review wherever you’re listening now
- Connect with Sue on Facebook
- Read about Pneumoencephalography, the technique that was used to diagnose Sue, and give sincere and heartfelt thanks the next time you’re in an MRI! Be warned: this is NOT for the faint of heart!
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~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com