Disabled Parking Placards and Other Indignities

Today my updated “Virginia Permanent Disabled Parking Placard” arrived in the mail.  This is the update from the original that I begrudgingly ordered 5 years ago.  I remember being so mad that I “had” to get this very visible sign of my invisible disease.  It just seemed like both a personal affront and an admission of epic proportion at the time.  I had put it off as long as I could.  My doctor had suggested it to me when I told him that my fatigue was making my job more difficult. At that time, I was a marketing rep for a physical therapy company which meant that I drove all over the place and met with doctors and their staffs.  It meant a lot of walking, and oftentimes parking a good distance from the office I was going in to.  My doctor tried to explain to me that this would help me conserve energy and that I needed to think in those terms now.  I always liked to park quite a distance from where I was going, just to get the exercise.  I also always took the steps instead of the elevator for the same reason.  These “healthy habits” were eating into my limited daily allotted energy.  Just parking closer could actually keep me going longer.  It could allow me to keep my job and better utilize my energy. And so I “accepted it” (sort of).  I only used it when I was having a really bad day.  I wanted to leave those parking spots open for people who had real issues.

And so it goes – things progress and I’ve learned to accept my placard as a gift (a necessary evil, yes, but also a gift).  I still downplay my need for it.  I use it only when I’m having a bad day, though those seem to be more frequent now then 5 years ago.  I blame the aging process for some of my need for this “help” as well.  Anything but give MS a win.  I realize that there is power in acceptance, and how much “digging in your heels” can zap your energy.  So – I accept and appreciate my little blue hanging tag for my windshield.  I’m still upright, I’m still driving, I’m still kicking MS’s ass – and intend to do so for a very long time.  Using something like a placard can actually help make that plan a reality.  Indignity be damned.  I’ll embrace it, use it and thrive, in part, because of it!  Are there any “helpful devices” that you’ve been slow to embrace (perhaps due to pride)?  Please share your experiences in the comment section below this post.

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Multiple Sclerosis News Update

 

Multiple SclerosisNews Update

 

LOADS of MS information in this post.  Find what’s interesting to you and click the link to read the article.  Enjoy!! […]

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FUMS 006 – Erin Clayton, Raising Money and Awareness of Multiple Sclerosis

Erin Clayton - FUMS Now Podcast

Erin Clayton

On today’s episode, we’ll meet Erin Clayton, a fellow MS’er who views her diagnosis as a blessing in disguise. WHAT?? I know – I’ll ask her about that! She was diagnosed 8 years ago and since, has raised over $200,000 for the National MS Society!! She’s back in school getting her Certified Nonprofit Professional certification and I’m sure we’ll all be hearing a lot more about her in the future. She’s got a lot of energy and a great FUMS attitude!! What more do you need??

You’ll Learn:

  • How Transverse Myelitis brought about Erin’s diagnosis
  • How Erin handled dating with MS
  • How Erin and her family raise a HUGE amount of money for the National MS Society
  • What tips Erin has for utilizing a dry erase board and a journal to track injection sites and symptoms

Resources in the Episode:

Erin’s Entourage link

 

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Multiple Sclerosis News Update

Multiple Sclerosis News

  I’m starting a new feature here at FUMS – “Multiple Sclerosis News Update.”  I’ll provide the headlines and the links to the most compelling stories in the Multiple Sclerosis world in the past 2 weeks.  Please let me know whether or not this is of value to you.  Leave me a message in the […]

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FUMS 005 – Organ Donation

CORE logo

http://traffic.libsyn.com/fumsnow/FUMS_005_-_Organ_Donation.mp3Podcast: Play in new window | Download | EmbedSubscribe: iTunes | Android | RSS   In this episode of the FUMSnow Podcast Show, I interview Susan Stuart, President & CEO of CORE – the Center for Organ Recovery and Education.  We talk about the need for organ donation and the easy process for sign up. […]

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